A curriculum that encourages kids to love and celebrate differences- cultural, racial, and medical. We want to familiarize kids with a variety of differences and share the value and beauty that these brings to our society. We want all involved…
The Fair and Summit aim to educate, engage, and inspire our community about the importance of rare disease research, with the hopes that everyone who comes knows how they can support accelerated research in rare diseases…
One of NORD’s (National Organization for Rare Disorders) goals is to assure that there is a Rare Disease Advisory Council (RDAC) represented at every State. Currently there are about 12 RDAC’s Nationwide. One of the NW Rare Disease Coalition Programs would be a WA RDAC. NORD advices and…
First study– We created a survey that will teach us how to differentiate what symptoms are associated with these Syndromes and which are not. We believe this will help parents know what to look out for and…
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