FaceBook Support Groups

Get in touch with your FGFR Craniosynostosis Family

BORN A HERO, Pfeiffer’s Health and Social Issues Awareness
Apert, Crouzon, Pfeiffer + All FGFR Cranio Syndromes

Apert’s and Pfeiffer’s Syndrome Friends
Pfeiffer Kids
Australian Crouzon and Pfeiffer Syndromes Support
Cranio Kids- Craniosynostosis Support
Cranio Angel Network
Craniosynostosis
Craniofacial Conditions- Support and Resources
Craniosynostosis Australia
Craniosynostosis Support Australia
Craniosynostosis Metopic Q&A CAPPSKIDS.org
Craniosynostosis Sagittal Q&A CAPPSKIDS.org
Craniosynostosis- Older Children
Apert Syndrome Awareness
Apert USA
Apert Mexico
Seathre-Chotzen Syndrome Awareness
Seathre-Chotzen Syndrome
Seattle Children’s Craniofacial Family Chat
The Special Needs Mama

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