Lucy’s Journey– Book Series

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Growing up with Pfeiffer Syndrome, Lucy was taught to love herself. She is a spunky little girl who has a fun sense of humor. “When I grow up, I want to work in a tall building next to my dad and in a place where my mom can bring me lunch.” Lucy says. Despite her medical challenges, she faces the world with a smile. She invites kids to see the world the way she does, in a positive way. Lucy is happy to talk about Pfeiffer Syndrome, but wants the audience to realize that it does not define her. For more information on ways you can help Lucy on her mission to teach kids to love and appreciate differences (including medical differences), email us at




Lucy becomes a big sister and her love circle grows. Life with her baby brother is an adventure. “Eli and I do ordinary sibling things, but to me he is extraordinary.” As Lucy gets older she becomes more aware of her “differences.” With her parents support and the love for her baby brother Eli, Lucy feels empowered and embraces what makes her unique. “I love my eyes and I think I am adorable. I realize that sometimes people just don’t get it.”


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